Data from2003/BS Using stroke registers for research: Example from RIKS stroke in Sweden.

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1 Data from2003/BS Using stroke registers for research: Example from RIKS stroke in Sweden

2 Data from2003/BS Registration of patients and feed-back data Riks-Stroke national database Registration of patients at local hospital via the Internet Simple statstical analysis of local hospital data online More extensive reports of data from Riks-Stroke once a year

3 Data from2003/BS Number of patients included in Riks-Stroke Data from2003/BS 1994 1995 1996 1997 19981999200020012002 0 5000 10000 15000 20000 25000 0 5000 10000 15000 20000 25000 193 700 events 20032004

4 Data from2003/BS Secondary prevention after stroke All patients (%) treated with Aspirin, antiplatelet agents, or oral anticoagulants

5 Data from2003/BS Patients treated in a stroke unit,

6 Data from2003/BS <75 years ≥ 75 years Patients examined with CT-scan % 1995 1996 1997 19981999200020012002 80 85 90 95 100 2003

7 Data from2003/BS Treated in a stroke unit Treated in a general ward 0% 20% 40% 60% 80% 100% 1994 199519961997 1998 1999 200020012002 2003 Patients treated in a stroke unit (SU) 76%

8 Data from2003/BS Patients still living at home 3 months after stroke without help from the community Age standardized and only people living independently at home before the stroke event %

9 Data from2003/BS % 0510 15 20 Jönköping Västerbotten Värmland Norrbotten Blekinge Skåne Västernorrland Dalarna Kronoberg Gotland Halland Västmanland Södermanland Kalmar Gävleborg V. Götaland Örebro Östergötland Uppsala Stockholm Jämtland 05101520 Patients that often or always feel depressed 3 months after stroke 13.2% %

10 Patients declaring their health as bad or very bad 3 months after the stroke event % Dalarna Jönköping Skåne V. Götaland Halland Värmland Västernorrland Kronoberg Norrbotten Västerbotten Kalmar Södermanland Örebro Östergötland Gävleborg Uppsala Blekinge Västmanland Jämtland Gotland Stockholm 051015202530 % 051015202530 20,3%

11 Data from2003/BS Stroke units vs. general wards – functional outcome at 3 months 0 20 40 60 80 Age standardised data and only patients fully conscious at admission are included Living independently at home Independent mobility Independent in primary ADL General wards Stroke units p<0,0001 %

12 Data from2003/BS 1995199619971998199920002001 0 5 10 15 3-months case fatality (only patients independent and fully conscious at onset) All ages SU GW %

13 Data from2003/BS How could we use data from a register? Adherence to national clinical guidelines Equity of healthcare delivery (age, sex, health care providers, geographical location, etc)

14 Data from2003/BS How could we use data from a register? Adherence to national clinical guidelines Equity of healthcare delivery (age, sex, health care providers, geographical location, etc) ‘Service epidemiology’ (are interventions working in routine care, satisfaction with stroke services)?

15 Data from2003/BS How could we use data from a register? Adherence to national clinical guidelines Equity of healthcare delivery (age, sex, health care providers, geographical location, etc) ‘Service epidemiology’ (are interventions working in routine care, satisfaction with stroke services) Simple epidemiology (socioeconomic factors, quality of life, depression, pain, fatigue)?

16 Data from2003/BS How could we use data from a register? Adherence to national clinical guidelines Equity of healthcare delivery (age, sex, health care providers, geographical location, etc) ‘Service epidemiology’ (are interventions working in routine care, satisfaction with stroke services) Simple epidemiology (socioeconomic factors, quality of life, depression, pain, fatigue) Register for recruiting to trials?